Wednesday Momring!
Well, Faith finally got to sleep at 2 a.m.!!!!! I was about 3:30. Unreal is all that comes to mind right now. It is frustrating again this morning because there are different doctors and staff in this wing. We have to start all over getting to know them and explaining the history. And again the 3rd nutritionist! I was nice but nice is wearing thin these days. I simply told her she is the third I have seen, and I am sure has a third plan. She explained that she had been off for a week. Ok. So I went through it briefly and explained where I was coming from. She has agreed to night tube feedings only so that she has a chance to regain her own appetite and eat again. We will start at nine p.m. and stop at 5 a.m. She ate well last night, so I am hoping that continues! She didn't have any weight to lose, but she did....her tush is smaller than its been in a long time and it was tiny to begin with. You can see the little bit of fat storage she has is depleted now. This has been exhausting for her, a month of this is too much for any little one!
The day nurse is nice and seems very sympathetic and has gotten the air turned on. At least I think its cooler, may just be me cooling off, hahahaha! She is also working on a privacy curtain for me. Tracy is also getting me a king size flat sheet cause I am all about being McGuyver and making my own! She has no privacy to use her potty cause she is plugged in to 5 different things and can't go to the bathroom. In the other room the bottom wall was solid and no one could see her. Here....no such luck.
Thats ok though....AJ and Faith are going to color all of the 20 big princess color pages and we will make privacy! bI am a treacher after all and know how to cover every inch of wall space! :)
This is a shot at 3 am of hpow big the window wall is, how small the curtain is and how much blasted light there was! And this is with no flash!
We will keep you posted from room 51. Area 51, that should have been my warning HAHAHAHA!
love,
Vicky